nusinersen

Trade name: Spinraza

Small moleculeapprovedOrphan Drug FDAFast Track FDA

Approved

Dec 23, 2016

Nusinersen, marketed as Spinraza, is a medication used in treating spinal muscular atrophy (SMA), a rare neuromuscular disorder. In December 2016, it became the first approved drug used in treating this disorder. — Wikipedia

Clinical trial activity

20 trials · 6 clinical orgs · 1 marketing orgs

Phase 1
6
Phase 2
10
Phase 3
6
Phase 4
1

Earliest trial started Nov 30, 2011 (NCT01494701)

Timeline

2010s

  1. Jan 1, 2011

    Earliest Phase 1 Sponsor(trial)

  2. Apr 18, 2011

    Orphan Drug Designation

  3. Jan 1, 2013

    Earliest Phase 2 Sponsor(trial)

  4. Jan 1, 2014

    Earliest Phase 3 Sponsor(trial)

  5. Dec 23, 2016

    Biogen-IDEC — Earliest FDA Approval

  6. Dec 23, 2016

    Biogen-IDEC — NDA Secondary Org

  7. Dec 23, 2016

    Biogen-IDEC — NDA Organization

Indications

Mechanism of action

  • SMN2 pre-mRNAPOSITIVE MODULATOR

    SMN2 pre-mRNA positive modulator

    SPINRAZA was shown to increase exon 7 inclusion in SMN2 messenger ribonucleic acid (mRNA) transcripts and production of full-length SMN protein

  • SMN2 pre-mRNAMODULATOR

    SMN2 pre-mRNA modulator

    SPINRAZA was shown to increase exon 7 inclusion in SMN2 messenger ribonucleic acid (mRNA) transcripts and production of full-length SMN protein

Approval history

  • approvedPriority reviewFast trackDec 23, 2016

Chemistry & pharmacology

Chirality
Single Stereoisomer
Inorganic
No
Polymer
No
Availability
Prescription Only

Oral

No

Parenteral

No

Topical

No

Sources

Also known as

  • isis 396443
  • isis 396443
  • isis-396443
  • isis-396443
  • isis-smnrx
  • isis-smnrx
  • nusinersen
  • nusinersen
  • nusinersen
  • nusinersen
  • nusinersen
  • nusinersen sodium
  • nusinersen sodium
  • nusinersen sodium
  • spinraza
  • spinraza

Clinical trials

NCT IDPhaseStart dateSponsor(s)
NCT07047144Phase 2Sep 15, 2025Scholar Rock, Inc.
NCT06555419Phase 1Dec 16, 2024Biogen
NCT05067790Phase 3Nov 22, 2021Biogen
NCT04729907Phase 3Apr 19, 2021Biogen
NCT04488133Phase 4Feb 26, 2021Biogen
NCT04576494N/ADec 31, 2020University of Reims
NCT04089566Phase 2/Phase 3 (Phase 3)Feb 26, 2020Biogen
NCT04159987N/ANov 30, 2019University of Nice Sophia Antipolis
NCT04050852Early Phase 1 (Phase 1)Jul 17, 2019New York University, Winthrop University
NCT02865109N/AAug 10, 2016Biogen
NCT02594124Phase 3Nov 4, 2015Biogen
NCT02462759Phase 2Aug 19, 2015Biogen
NCT02386553Phase 2May 20, 2015Biogen
NCT02292537Phase 3Nov 1, 2014Biogen
NCT02193074Phase 3Jul 1, 2014Biogen
NCT02052791Phase 1Jan 1, 2014Biogen
NCT01839656Phase 2May 1, 2013Biogen
NCT01780246Phase 1Jan 1, 2013Biogen
NCT01703988Phase 1/Phase 2 (Phase 2)Oct 1, 2012Biogen
NCT01494701Phase 1Nov 30, 2011Biogen
Showing 20 of 20 trials
Page 1 / 1

Organizations

Research & Development (6)

OrganizationOrg typeTrialsAs lead sponsorPhasesEarliest year
BiogenFor profit161652011
New York UniversityAcademic/Hospital1112019
Scholar Rock, Inc.For profit1112025
University of Nice Sophia AntipolisAcademic/Hospital1112019
University of ReimsAcademic/Hospital1112020
Winthrop UniversityAcademic/Hospital1012019
6 organizations
Page 1 / 1

Marketing (2)

OrganizationOrg typeRelationshipDate
Biogen-IDECFor profitNDA2Dec 23, 2016
Biogen-IDECFor profitNDADec 23, 2016